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  1. lizzie

    lifetime lethergy

    fuzz - ask your doc to take some further bloods tests. common genetic conditions (and severely under diagnosed) that cause tiredness are coeliac (1/100 people), heamocromotisis (1/200 people) and type2 diabetes (1/20 people).
  2. lizzie

    lifetime lethergy

    saw that too ... although would've been nice if the patient had some of the actual symptons instead of just going full blown - although, i suppose "most" of the sympton don't show until later in life when the buildup is severe but the lethary can be lifetime. yes - that is a side effect. i...
  3. lizzie

    lifetime lethergy

    even if there is no current liver damage - the only treatment is to drain blood, and therefore dilute the iron level, otherwise they continue to build and cause all those problems .... life's little spanners! at least i now have an answer, but am angry at the waste of the last 40 years spent in...
  4. lizzie

    lifetime lethergy

    my doc's is waiting for my dna tests to come back to confirm ... i find out next week but she is pretty sure that's what i have given the identical list of symptons that i gave before i even knew about the condition, and the initial results. i've just been reading the heamochromatosis forum...
  5. lizzie

    lifetime lethergy

    what really surprises me is that there is no standard "compulsary" test for this abnormality - and how undiagnosed it goes. according to research, 1 in 200 people have the full condition, and 1 in 9 are carriers ... with the majority being from north european descent - and the majority...
  6. lizzie

    lifetime lethergy

    thanks for that ... been crusining the net most of yesterday afternoon reading. although the problem has been around a long time, there is still relatively little information. i know that one doesn't "have" to change their diet - but might as well hit it from both angles, and eat healthier...
  7. lizzie

    lifetime lethergy

    the normal body stops absorbing iron from digestion when the daily requirement is met ... someone with hemochromatosis doesn't stop absorbing iron even when the requirements are exceeded. iron is in most foods. some foods, like red meat, have a much higher proportion of iron than - say -...
  8. lizzie

    lifetime lethergy

    looks like i'm going to have to become a pure foods vegetarian ... although apparently i am allowed red wine in moderation (what's that) http://www.irondisorders.org/Websites/idi/Files/Content/854256/DietRecommendations.pdf
  9. lizzie

    lifetime lethergy

    i have those too - as well as getting aching hip joints. how did mrs fish deal with it? there seems to be a lot more info about diet coming out, and this would be my preferred method of complimentry control (except the wine thing!) if i am able, and i have to have blood removed anyhow, i'll...
  10. lizzie

    lifetime lethergy

    oooo - and then i just read that the intial treatment is to give a 1/2 litre every 4-7 days to get it under control, before the maintenance of once every 4-6 months kicks in. i feel really crook! http://digestive.niddk.nih.gov/ddiseases/pubs/hemochromatosis/#what reading up on the diet...
  11. lizzie

    lifetime lethergy

    just got back from the doc's ... it's a large practice with several doctors and i rarely see the same one twice. when i rang about the last barrage of tests 3 months ago, i was told by the receptionist that the doc had no concerns. anyhow, bit the bullet and went back today to get this...
  12. lizzie

    lifetime lethergy

    lots of interesting replies. i'll see doc first and do sleep clinic to rule that out before trying other ideas. i do take multivits but very happy to have more massages :D! interesting to think back over the years. all my school reports from day one said "has intellegence but needs to...
  13. lizzie

    lifetime lethergy

    hmmm - tender - but is that because of a blocked lymph system, or because i've been mowing the lawns, trimming the edges, moving mulch, painting doors, sanding ... ? no, i'm not tired because i've been working to hard - asides from the odd hard day (maybe one a month) i tend to take it all...
  14. lizzie

    lifetime lethergy

    marked for after i get the damn line trimmer working!
  15. lizzie

    lifetime lethergy

    i don't have the night terrors - in fact i rarely have any nightmares nowadays due to the ability to control the dreams direction. i used to have a lot of nightmares as a child tho. propogate, i know exactly what you mean - the dreams are so real that they are as if they reality. i to get...
  16. lizzie

    lifetime lethergy

    looking back, all my life i've suffered from various stages of lethergy - and now in my 40's it's really starting to become a problem and i don't want to live like this anymore. as a child i was written off as lazy. as a teen and early 20's i wrote it off as burning the candle at both ends...
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